|Day 1 - When he still seemed like a little boy.|
|Day 3 - Get the first transfusion. In this picture he is so much my sweet little boy, being silly and looking so cute.|
|Day 8 - First day home and oh so happy. Soon his smile would be replaced by tears as the hardest part was yet to come.|
|This is when it started to get bad. He was starting to swell, pain would soon have him immobile.|
|The day we cut off his hair. So swollen and bruised.|
|A forced smile. During this time he slept much of the day, and when he was awake he cried. He couldn't sit upon his own and was left utterly dependent on me. It even got to the point he couldn't hold a cup.|
|On his birthday, the swelling is going away and hes starting to smile more.|
|Outside for a hike, aside from trips to the hospital this is about the first time in 2 month he was outside. Happy and smiling, hes starting to be his old self.|
|On a field trip. Swelling has about disappeared and the pain is gone. Only residual weakness and hand tremors remain.|
But when it was bad it was bad. The drugs might save his life, but they tortured him first. The swelling was incredible. I will never complain about being swollen during pregnancy again. And his weakness was humbling. I watched him try, and fail, at getting a drink of water. His hand couldn't grasp the cup and it fell to the ground. He never asked for help, never complained. And I cried a lot with him because his soul was so strong even when his body wasn't. He would tell me he loved me and thanked me for my help.
I write this not just so you can have a glimpse of what it is like. How we manage. But also so I will never forget how far he has come.